Emma was taken to A&E due to feeling unwell, we could have never imagined that our world would be turned upside down.

If this cancer were better understood, maybe Billy could have celebrated more birthdays, blown out more candles.

One night at bedtime, Georgia said she couldn’t see the book we were reading properly. I made her an eye appointment – she never made it

A junior doctor stood in the doorway and said they had sent the images to the National in London as there was a mass in her brain

Within a week life with two healthy beautiful children changed forever. Jacob had been given 9-12 months to live.

It became obvious she wasn’t hearing well. In the following weeks her face started to droop on one side when she was laughing or crying

I knew something was wrong and no one listened to me.

It started as a normal morning, his dad dropped him and Lucy off to me first thing so I could take them to school

Just four days before his passing he still managed to go to Wembley to watch his beloved Aston Villa beat Liverpool.

D.I.P.G - the 4 cruel letters that have destroyed our happy little family.

We were told to go home and make memories as your daughter had something called Diffuse Midline Glioma

We had never imagined that Noah’s difficulties could be life threatening

Nothing in the world could have prepared us for what came next.

Logan was terminally ill and unlikely to survive more than around 8 months (with radiation) or 6 months (without).

on her sixth birthday, Ellie had a CAT scan. We had to cancel her birthday party, which made her extremely upset.

Aksel was 5 when we first noticed things were not quite right.

there were no treatment options available…and she was given only a few weeks to live. 

We noticed he had a funny turn to his head while he was drawing with his brother.

Following a MRI scan the most devastating diagnosis was forthcoming with the words that nightmares of made of

Zoé had just turned 8 years old when she passed away from DIPG