Charity Reg: 1149400
Abbie's Army has been formed by the family of Abbie Mifsud. She was a remarkable daughter and brave little girl who on September 13th 2011, at only 6 years of age lost her fight with an inoperable and incurable (DIPG) brain tumour.
This is the MOST FATAL form of childhood brain cancer growing in the brainstem making surgery impossible. The only standard treatment is 6 weeks of palliative radiotherapy for symptom respite. The median survival time is just 8-12 months. Abbie passed away only 5 months after her initial diagnosis.
Our mission is to RAISE awareness and contribute much needed funds for children's DIPG brain tumour research which currently is so very underfunded. DIPG affects only 40 children a year in the UK with most funding coming from the parent led charities who have all lost a child to the disease. It may be too late to help our beautiful girl but we can all commit to helping the DIPG families of the future.
ANY donation that could offer hope and the development of new treatments to these children, where currently there are NONE that are effective, is extremely worthwhile. To do this in Abbie's memory is an honour and means the world to us.
EVERY 9 DAYS A CHILD IN THE UK IS DIAGNOSED WITH DIPG.
1 CHILD DIES EVERY 3 DAYS FROM A BRAIN TUMOUR IN THE UK.
FROM LOSS THERE IS HOPE AND INSPIRATION.
CHEQUES CAN BE MADE PAYABLE DIRECTLY TO 'ABBIES ARMY
Charity Registration 1149400. (Reg Oct 2012)
THANK YOU for visiting Abbies website.
NEW FUNDING ANNOUNCEMENT!!!
A grant award of $95,325 - has been made via the DIPG Collaborative to fund 'The Evolutionary Dynamics of DIPG' This extends our support of Chris Jones at the Institute of Cancer Research carrying out the study.
A UK 1ST!! CHILDHOOD CANCER AWARENESS MONTH is SEPTEMBER 2014 IN THE UK
Please go to our Events page to download your #GoldenDayz poster for your workplace, school, club or group. Contact us for your childhood cancer awareness ribbon £2.50 inc postage.
Support children like Abbie Text DAYZ14 £amount to 70070
Scientists from The Institute of Cancer Research Chris Jones and our Abbies Army funded PhD Katy Taylor presented their findings 'The role of ACVR1 mutations in diffuse intrinsic pontine glioma (DIPG)' at ISPNO in Singapore on June 28th.
The DIPG Collaborative also held a sponsored session in front of the general audience of over 1,000 researchers to make our case for the homerun strategy and more research. This partnership pushing for these coalitions for DIPG kids WORLDWIDE truly can make BIG differences
Abbies Army were extremely proud to be cited earlier this year by the Institute of Cancer Research for our previous funding award. Researchers published a paper in the journal 'Nature Genetics' which revealed a key genetic driver of the disease for the first time. The mutation of the ACVR1 gene was identified in around 25% of all DIPG cases and is promising because it throws open the option of a druggable target. Please read the full ICR release here on their website:
Abbies Army is proud to be part of the International fight against DIPG with the DIPG Collaborative. We are listed as a contributor on 9 new research papers selected in 2013 predominantly in the US. Created in 2011, the DIPG Collaborative is an association of foundations unified with the mission of efficiently funding and inspiring diffuse instrinsic pontine glioma cancer research. As part of the initiative dedicated funds are now being raised allowing for long-term study and the development of new protocols and registry data.
At the end of 2013 the Collaborative have invested in $850,000 of new research grants selected by its Medical Advisory Council which allows for streamlined research, transparency and limits duplication. The combined effects of these funds are inspiring! Visit www.dipg.org for more information!
Abbie's Army Fundraising Totals Donated
Abbie's Army has raised the following amounts for our chosen research centres.... (Abbies Army funding to ICR and DIPG Collaborative)
MORE than £300,000 has be raised to date! THANK YOU ALL
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